Desperate parents launch S$2.4 million crowdfunding campaign to save baby Lucas from rare genetic disorder
SINGAPORE — Lucas, a 2-month-old baby diagnosed with a rare genetic disorder, has parents who have been left with no…
Singapore has about 2,000 to 3,000 patients afflicted with chronic rare diseases
An estimated 2,000 to 3,000 people are afflicted with chronic rare diseases in Singapore, said Minister for Health, Ong Ye…
Paul Tambyah: Not appropriate to fund treatment of rare diseases through crowd-funding or charity funds
SINGAPORE — Dr Paul Ananth Tambyah says that it is not appropriate for Singapore to rely on crowd-funding or charity-based…
MOH maintains the question of whether to support expensive treatments for rare diseases when efficacy is uncertain
SINGAPORE — “There remains the broader question as to whether the Government should support treatments regardless of their cost, particularly…