On Wednesday (2 Aug), baby Lucas, diagnosed with rare genetic disorder Spinal Muscular Atrophy (SMA), triumphantly underwent a life-changing Zolgensma treatment. In July, his parents urgently...
Singapore's healthcare system grapples with the high cost of treating rare diseases. Patient advocate Sherry Toh, battling Spinal Muscular Atrophy, highlights the dichotomy between life-altering treatments...
Lucas, a 2-month old baby diagnosed with Spinal Muscular Atrophy (SMA) Type 1, a rare genetic disorder that requires Zolgensma treatment priced at S$ 2.4 million,...
An estimated 2,000 to 3,000 people are afflicted with chronic rare diseases in Singapore and the Rare Disease Fund (RDF) has supported nine patients, which represents...
SINGAPORE — Dr Paul Ananth Tambyah says that it is not appropriate for Singapore to rely on crowd-funding or charity-based funds to support treatments for patients...
SINGAPORE — “There remains the broader question as to whether the Government should support treatments regardless of their cost, particularly if the efficacy is uncertain,” said...
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