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30,000 people raised S$2.868mil to help S’porean parents buy world’s most expensive drug Zolgensma for baby with SMA

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About 30,000 donors have come together to raise S$2.868 million for a two-year-old baby, Devdan D, to get a one-time-only gene therapy treatment Zolgensma, just 10 days after a crowdfunding campaign was launched.

Devdan’s parents, namely Dave and Shuwen, launched the crowdfunding campaign with Ray Of Hope on 3 August to raise S$2.868 million for their son’s treatment, who was diagnosed with Type 2 Spinal Muscular Atrophy (SMA).

SMA is a rare condition that damages nerve cells in the brain and spinal cord, which may lead to progressive muscular weakness and trouble with activities – such as breathing, speaking, swallowing, and walking – if left untreated.

Though there are two other alternatives for Devdan – daily oral medication and intrathecal injection every month for the rest of his life – his parents believe that Zolgensma can be more cost-effective in the long run.

Zolgensma is said to be the most expensive drug in the world valued at USD2.125 million (S$2.868 million) per patient, which will help Devdan improve muscle strength and increase survival with minimal deterioration.

In an update on Friday (13 Aug), Ray Of Hope stated on the crowdfunding page that they have achieved the goal to raise S$2.868 million in the span of 10 days since the crowdfunding campaign was launched.

“We are working with the NUH (National University Hospital) Finance team to make the necessary payments. Donors will be updated once the funds have been transferred,” it said.

Devdan’s parents expressed their gratitude to those who have contributed to the crowdfunding initiative, noting that the amount of money raised was “an astronomical figure” to them and that they have been “silently carried the feeling of helplessness” for over one and a half years.

“We are completely blown away by the level of support, love and generosity that poured in. Thank you to everyone who have helped us whether by making a contribution, spreading the word, sending us words of encouragement or keeping us in your thoughts and prayers.

“We are deeply grateful. You have given Devdan a second chance at life,” they remarked.

Dave and Shuwen further noted that they are excited to start working with the doctors and experts to move forward with the treatment for Devdan.

“When he is older, we will show him the messages that were written to him and tell him how each of you have came together and helped make his life possible. You have made it possible to cross this a big milestone. Thank you for being a part of Devdan’s journey,” they added.

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WMP raises over S$1,600 in a day to help struggling family clear outstanding water bill

Workers Make Possible (WMP) raised over S$1,600 in a single day to assist a struggling family living in a rental flat. The family’s water supply was reduced due to an outstanding S$900 bill. The mother has been severely ill for months, unable to work, leaving her husband, who earns less than S$2,000 per month after CPF deductions, as the sole breadwinner.

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SINGAPORE: A struggling family living in a rental flat had their water supply reduced on 1 October, as revealed in an Instagram post by the workers’ rights advocacy group, Workers Make Possible (WMP).

In an effort to ease the family’s burden, a fundraiser was launched. By the evening of 1 October, S$1,620 had been raised.

Of this amount, S$1,200 was transferred to the family to fully clear their outstanding water bill and address other urgent expenses.

The family, which had been accumulating water bill arrears for several months, was informed by SP Group that their water supply would only be fully restored if they paid S$450 upfront—half of their total outstanding bill of S$900.

According to WMP, the mother of the family has been severely ill for months, leading to her inability to work.

As a result, her husband, who earns less than S$2,000 per month after CPF deductions, is the sole breadwinner for the family, which includes young children.

With the rising cost of living in Singapore, the family has struggled to manage household expenses, leading to unpaid bills, WMP shared in the post.

After contacting SP Group, the mother was told the water supply would resume if half of the arrears were paid. However, she could not afford the required S$450.

This situation occurs amid rising water prices in Singapore.

The government raised the price of water by 20 cents per cubic metre this year, with an additional increase of 30 cents planned for next year.

WMP argued that despite government subsidies, many low-income families continue to struggle to cover their basic utility bills.

“Subsidies offered by the government don’t come anywhere close to alleviating the struggles of poor families in paying these bills. PUB earned about $286 million in 2021,” WMP challenged.

To support the family, Workers Make Possible organised a fundraiser via PayNow. In a 5:30 pm update on 1 October, WMP announced that S$1,620 had been raised.

Of this amount, S$1,200 was sent to the family to clear their water bill, while the remaining S$420 will be used to assist a young warehouse worker struggling with illness and rent payments, WMP clarified.

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Fire breaks out at HDB Hub in Toa Payoh

A fire broke out today (2 October) around noon in the Basement 3 bin centre of HDB Hub at Toa Payoh Lorong 6. The Singapore Civil Defence Force quickly extinguished the fire and is conducting investigations. The building has resumed full operations, but the public is advised to avoid the loading and unloading bay in Basement 3.

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A fire broke out today (2 Ocrober), at approximately noon at HDB Hub, located at Toa Payoh Lorong 6.

According to a Facebook post on the official page of the Housing and Development Board (HDB), the fire originated in the Basement 3 bin centre of HDB Hub.

The Singapore Civil Defence Force (SCDF) was promptly activated and has since extinguished the fire.

Investigations into the cause are currently underway, with SCDF remaining on-site.

In light of the disruption caused by the incident, HDB has informed customers that they may experience longer wait times for appointments.

“Our foremost consideration is the safety of our staff, customers, and members of the public at HDB Hub,” stated HDB, “We thank the public for their patience.”

Reports indicate that three fire engines, a rescue vehicle, and two ambulances were deployed to the scene, with at least 10 firemen present to manage the situation.

An announcement made at approximately 2.05 pm confirmed that the building has resumed full operations; however, the public is advised to avoid the loading and unloading bay in Basement 3.

HDB Hub, the headquarters of the housing board, is situated adjacent to Toa Payoh MRT station and features retail spaces alongside an indoor plaza and a 33-storey office tower.

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