Desperate parents launch S$2.4 million crowdfunding campaign to save baby Lucas from rare genetic disorder

Lucas, a 2-month old baby diagnosed with Spinal Muscular Atrophy (SMA) Type 1, a rare genetic disorder that requires Zolgensma treatment priced at S$ 2.4 million, which is not subsidised by the government, nor is SMA treatment covered by the Rare Disease Fund. His parents, unable to afford it, appeal for crowdfunding. SMA progressively weakens muscles, robbing him of basic abilities. They seek the compassionate community’s support to give Lucas a fighting chance at life.